![]() ![]() The private Facebook groups that are only for people with CCD now have a roster of more than 1,200 members from around the world. “It was important for me to find every single person with this condition who might feel isolated and alone” she added. It filled a big hole in my heart,” she said. ![]() It wasn’t until I was 33 years old that I met someone else with CCD through Facebook. “I grew up in Central California, and it was hard to find anyone else like me. The Utah nurse practitioner who runs her own clinic was also born with CCD. Because he’s so lovable, people are more likely to want to come out of the woodwork and say they have CCD and become part of the CCD family.”Ĭonnecting those people and building a CCD family is what Wosnik set out to do. “He’s a very popular Hollywood star, and he’s put it out there. ![]() That has helped so much with awareness,” she told Healthline. “‘Stranger Things’ gave him a huge platform. “Gaten has made it cool to have CCD,” said Kelly Wosnik, DNP, a nurse practitioner in Utah and the founder of CCD Smiles. The only requirements were gym and English” he said. There’s no like requirements anymore since I’m a senior. I took a bunch of elective classes this year. In a recent interview on the Tonight Show, Matarazzo talked about his final year in high school. He also shares information with his 13 million Instagram followers about his everyday life, even though normal for him includes multiple dental surgeries. Part of that interest is likely because Matarazzo has been so open about what it’s like to live with the condition. And traffic to one of the CCD-related websites reached 10,000 visits in that same time period. The researchers found that global search interest in CCD spiked nearly 95 percent the week following the release of season three last July. They published their results last week in a research letter in the journal JAMA Otolaryngology Head and Neck Surgery. Scientists at Oklahoma State University studied search engine trends and CCD-related foundation websites to gauge public interest in the rare disorder after the first three seasons of the Netflix series. Netflix says season three of the series was seen by 64 million households in the first 4 weeks after its release last summer. The producers wrote the “Stranger Things” storyline so that Matarazzo’s character would have CCD, too. Gaten Matarazzo, the 17-year-old actor who plays Dustin Henderson on the show, was born with CCD. ![]()
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